A healthy living blog from Marshfield Clinic

Cystic Fibrosis: A parent’s perspective

The parents of 7-year-old Alec Scharenbroch know what it’s like to care for a child with Cystic Fibrosis (CF), a genetic lung disease found in one in 3,000 babies that causes persistent lung infections and limits the ability to breathe over time.

Like many parents of children with CF, the news is life changing as they learn more about the challenges and life-long treatments. But it doesn’t have to stop children with CF from living a normal life.

Alec meets regularly with physicians and specialists with the Marshfield Clinic Cystic Fibrosis Center, one of only 120 centers and 55 affiliate centers nationwide that specialize in care for patients with CF.

Hearing that Alec was born with CF was life-changing news, but thanks to advanced treatments, the medical care from his team at Marshfield Clinic and ongoing research, we’re confident knowing that Alec can live a normal life,” said Eric Scharenbroch.

In this video, Alec’s parents tell the story of their journey of caring for a child with CF and their hope that research can find more advance treatments and ultimately a cure for the disease.

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