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End-of-life care: Legacy building

Grandparents talking to granddaughter, toddler - Legacy building and dignity therapy
Legacy building activities provide important healing not only for your family, but also for you if you are faced with end-of-life decisions.

If you are faced with end-of-life decisions, helping your family cope with the grief of your death is often a concern.

Legacy building activities provide important healing not only for your family, but also for you.

“Everyone has a story and this is a way to really reflect, process that story and leave memories for those we love long after we are gone,” said Marcy Elwood, clinical oncology social worker with Marshfield Clinic Health System.

Dignity therapy

Elwood has training in dignity therapy, a specific type of legacy building activity. Dignity therapy involves recording an interview and turning it into a legacy book to give to your family.

“I’ve done these with patients who have wanted one for various reasons,” Elwood said.

The book includes information from your life including:

  • Memories such as your wedding day or birth of your children
  • Accomplishments such as graduations and awards
  • Particular things you want to say to your family
  • What you have learned

Research has shown dignity therapy improves the quality of life and decreases anxiety and depression if you go through the process. It also can lead to an increased sense of dignity and purpose, heightened sense of meaning and belief that it helps your family.

Dignity therapy books are written in the patient’s words. Even after they are not physically here, their loved ones are able to read these documents and hear their loved one talk through the legacy book they created,” Elwood said.

Other legacy building activities

Most legacy building activities like dignity therapy help you reflect on your life in a positive way. It also helps you prepare for future events you may miss.

“A lot of times they think about future events and how they can still be there for their families during those times,” Elwood said.

Other examples of legacy building activities include:

  • Purchasing and filling out end-of-life books
  • Leaving cards, letters or other gifts for future events or family members
  • Completing advanced directives and other legal documents
  • A video or audio recording
  • Taking photographs or other images such as hand prints for memories

For more end-of-life legacy building activity ideas, talk to a member of your health care team.

3 responses to “End-of-life care: Legacy building”

  1. homens mentem

    You have a great site and content, I'm glad you liked it here. 58865156

  2. Carol Rand

    Does the clinic have these end of life books? If so what is the charge and can a person view one.

    1. Kirsten Shakal, Shine365 Editor

      Hi, Carol. I contacted Marcy, clinical oncology social worker, with your questions. She said the specific dignity therapy books she does with patients are not available to purchase. They are done individually through audio-recorded interview which they then transfer to book format.

      However, she did share with me that there are many available to purchase online through various retailers. Here are a few she located:

      https://www.uncommongoods.com/product/my-life-story-so-far

      https://www.amazon.com/dp/1441322310/

      https://www.amazon.com/Book-Myself-Yourself-Autobiography-Questions/dp/1401303099/

      I hope this helps and thank you for reading Shine365. -Kirstie

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